A Family Coping With Disabilities

By Veronica Travez, ChildFund Ecuador

Daniela, mother Jessica and brother Pedro

Daniela, mother Jessica and brother Pedro, in their homeland of Ecuador.

Daniela is 15 years old, and she and her two brothers are albino. Albinism is a rare genetic condition characterized by the absence or reduction of melanin in the skin, eyes and/or hair.

Daniela’s family lives in the northwestern area of the province of Pichincha in Ecuador, a region that’s subtropical and humid. Her home is made of wood, which helps protect the family from high temperatures, humidity and insects.

Vicente, her father, is a farmer, and Jessica, her mother, is a seamstress. With the help of Daniela’s sponsor, Susan, the family was able to obtain a loan to buy sewing machines and have installed a textile workshop in their home. This business allows them to share quality time with their children while supporting them financially.

Albinism causes difficulties for Daniela and her brothers. Because melanin is necessary for the development of the eyes, the siblings have experienced problems with their vision. However, Daniela’s sponsor has sent money that covers vision treatment, so the siblings’ sight has improved.

“Thanks to the support of my sponsor, I have excelled economically, in my health and in my studies,” Daniela says, “and I was able to be trained as a young leader.”

Daniela also participates in a ChildFund-supported community program for school-aged girls and boys, where they receive social and financial education, as well as learning about their rights, responsibilities, self-esteem, saving money and frugal spending.

Jessica is a trainer in the program, and she notes that she too has learned a lot throughout the process. “I have met new friends; I learned to respect and care for my peers with disabilities. At school we performed a skit about people with disabilities, teaching children not to discriminate against them. 

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